How to Delete Your Data from 23andMe: A Simple Guide for Protecting Your Privacy
With 15 million people sharing their DNA on 23andMe since its launch in 2006, many users are now questioning the safety of their personal health information. Concerns have grown, especially after a major data breach last year that affected 7 million customers, leading to a class-action lawsuit and a $30 million settlement. Given recent leadership changes and uncertainty surrounding the company, it’s understandable to want to take control of your genetic data.
Why You Might Want to Delete Your Data
23andMe can provide valuable insights into family origins and personal health risks. However, with the future of the company unclear and laws like HIPAA not protecting direct-to-consumer genetic tests, many users are feeling uneasy. According to Dr. James Hazel, a privacy expert, “there’s a relatively low baseline of protection” for genetic data generated outside healthcare settings.
What Data Does 23andMe Collect?
When you provide a saliva sample, 23andMe collects various types of information, including:
- Registration Information: Sex, date of birth, and more.
- Genetic Information: Your ancestry, traits (like eye and hair color), health predispositions, and carrier status.
For detailed information about what data is collected, you can refer to 23andMe’s privacy statement.
The Company’s Data Usage Policies
A spokesperson for 23andMe emphasizes that the company aims for transparency. They state that customers can choose how their data is used. About 80% of users opt to share their data for research purposes. Importantly, they don’t share information with employers, insurance companies, or law enforcement unless you give explicit consent.
How to Delete Your Personal Information from 23andMe
If you’ve decided that you no longer want 23andMe to hold your genetic information, deleting your data is straightforward. Here’s how:
- Log into Your Account: Navigate to your account settings.
- Select “23andMe Data”: Under the “Settings” section, look for the option labeled “Delete Your Data.”
- Confirm Your Request: You’ll receive a confirmation email to finalize the deletion process.
While the majority of your data will be removed, 23andMe is required to retain some information for legal reasons. Once you delete your data, it will no longer be used for research, and if you chose to have your sample saved, it will be destroyed.
Peace of Mind in Your Hands
23andMe allows users the option to delete their accounts at any time. Once your request is confirmed, the deletion process begins immediately. This provides a layer of control over your personal health information, especially in an era where data privacy is more important than ever.